- Mila is now ~9.5 lbs! Gaining about an ounce a day which is exactly what they wanted to see. She has no issues feeding... other than those nightly cluster feedings where she wants to eat every hour for 4 hour stretches! Yikes- that hasn't been fun!
- We met with the cardiologist yesterday and surgery will be scheduled for the end of September/early October. Her oxygen level is slowly dropping- as it should, that's expected- but there's no need to let it go too far. Ideally, for strength and growth, they want to see her hit the 2 month mark for the surgery.
- We will go for another appointment in 2 weeks to get updated pictures and we'll get a surgery date following that.
I'm relieved there is finally "an end" in sight. This lingering surgery weighs on us every day. And, catch 22, now that we have a timeframe I'm terrified. She's in amazing hands with her medical team (and us!) and I'm placing my bets there.
While those cluster feedings have revealed under-eye bags Ryan and I never knew we had, we've managed to have some pretty special times with Mila as well. She's our "Mila Bean".
Thanks again for all the positive energy sent our way.
|First family stroll (with the dogs) at Half Moon Bay- 9/11 Memorial|