By Sunday, all her lines had been removed, she "graduated" to an open bassinet and was moved to a different room. We could even dress her in onesies now! They were now prepping us to take her home- filling us up with tips, teaching us how to administer her meds, filling out paperwork, etc. It was a little surreal. Could this really be happening? (And how do we find any comfort in taking home a baby wth a heart defect and not totally freak out at every move, sound, flinch?)
We've been home with her together all week. She made it through her first pediatrician appointment with flying colors. Tomorrow, Friday, we meet with the Cardiologist again and see if there's any more clarity on her plan. We remain in our "cautiously optimistic" zone. We have to. We know her surgery won't be as complicated but it is open-heart surgery and we know we will have to face it at some point in the next week or 90 days.
For now, we have and hold her :)